ఆ పాప బతకాలంటే రూ.16 కోట్లు కావాలి.. డెడ్‌లైన్ 3 నెలలే

[toranam]

https://www.impactguru.com/fundraiser/donate-to-teera

 

TEERA'S CONDITION

Our daughter, Teera, at a very early age of 2 months, is diagnosed with SMA Type 1, one of the most severe, early-onset forms of Spinal Muscular Atrophy. The disorder attacks the baby’s nerves and muscles, and as it progresses, makes it extremely difficult for them to carry out basic activities like sit up, lift their head, swallow milk, and even breathe.

 

SMA affects 1 in 10,000 babies, and is the #1 genetic cause of infant death worldwide.

 

We, as Teera’s parents, want to give her, a lively and happy child, her best chance to not only survive, but also live a fulfilled, long and normal life.

 

TREATMENT OPTIONS IN INDIA

As of now, there are no treatment options available in India for this invisible killer.

 

We are extremely fortunate to have her diagnosis early, because it gives us a chance to fight this before her symptoms become severe. Our only hope for Teera to have a normal life is to be able to import Zolgensma, a one-time gene replacement therapy, which in her current state could be a potential “cure”.

 

Zolgensma comes at a steep cost of INR 16 crores (USD $2.1 million).

 

WHAT YOU CAN DO TO HELP

• Donate money. Please donate with your heart so we can save our Teera’s life.
• Contribute your time. We are in for the long haul in our fight against this deadly disease. The best course of action is to raise awareness and get the necessary infrastructure set up in India. Only time and continuous lobbying will contribute to long lasting change.
• Spread the word. Healthy parents could have a genetically affected baby. Genetic testing is in a nascent state in India, with limited labs and clinics available for diagnosis. Tell others about genetic testing, so this becomes a common practice as it is in most western countries like USA and Canada, where genetic screening is part of the post-natal care.

 

Follow Teera's Fight with SMA on

• Instagram: https://www.instagram.com/teera_fights_sma
• Facebook: https://www.facebook.com/TeeraFightsSMA
• Twitter: https://twitter.com/TeeraFightsSma

 

 

[Amrita]

LTT

[NiranjanGaaru]

Ltt

[ranku_mogudu]

Done my contribution.

 

LTT

[Assam_Bhayya]

Just done with my contribution(5k, being in India i can only afford this much for now).

 

And i wonder why do the hospital or the medical world need that much money to cure a rare disease that too for such a cute infant girl. Can't they do it for free or nominal charges for the so called experts/doctors/scientists logistics and get good will in return. Anyway they make good amount on adults and older people right, saying Diabetes, respiratory infections, gastro, surgeries, heart related treatments banging with people with cardiac Stents and costly medicines. . . 

[vasu1234]

Ltt..god bless her with long life will do my best